Off The Record
Girl Born With Gigantic Head That Refuses To Stop Growing Stuns Doctors Decades Later
There are billions of us here on Earth, and we’re all different in our own special ways.
We each come from different backgrounds and have different families that have supported us from the beginning of our lives.
And there are always cheers, happy tears and excitement when a new family member is welcomed into the fold.
But Adalgisa Soares Alves, while pregnant with her daughter Graziely, knew something was very wrong.
Adalgisa’s stomach symptoms worsened throughout her pregnancy, and her daughter was born with an unusual disease that is making headlines across the world.
Somewhere in the world, a new baby is born every minute of every day.
Someone who has just been born and is now seeing the sun for the first time. Who, with any luck, will be raised in a caring family.
But Graziely’s mother knew she was unique and exceptional even before she was officially introduced to the public.
Adalgisa Soares Alves, a mother from So Lus in northeastern Brazil, experienced progressively severe stomach aches in the eighth month of her pregnancy.
There was a unique purpose for this, and it would soon become clear.
Graziely was born with the condition hydrocephalus, also known as “water on the brain,” which caused significant developmental delays.
According to the Daily Mail, this illness occurs when there is an excessive amount of cerebrospinal fluid within the skull, which causes the head to expand at a faster rate than the rest of the body.
Due to the severity of the diagnosis, Graziely’s prognosis was not good.
They warned her that she and Adalgisa might not have more than a few months together, as they hoped she would be ready for the worst.
Adalgisa, who already had two children, found it very difficult to hear such devastating news. The only people who were wrong about Graziely, it turned out, were the physicians.
The tiny warrior will be 30 years old in 2023, defying all obstacles.
”’I always hope that she will live [for] many years. She transmits positive energy and I feel a peace that overflows when someone visits her,” Adalgisa says in an interview with Daily Mail.
Graziely, however, is unable to see, speak, or walk because of her illness. Fewer than one in a thousand infants are born with hydrocephalus, making it a very uncommon disorder.
The best possible prognosis for affected newborns can only be achieved by early identification and adequate treatment.
Adalgisa is her daughter’s full-time caregiver and personal assistant. She currently relies heavily on the Brazilian government’s disability payments.
”I’m dedicated to Graziely and it makes me happy to see her well cared for, from me and all of our family. I don’t work, I just take care of her — I’m happy to take care of her and it is rewarding when I see her smile,” she says and continues:
”I never lose hope because I am a woman of great faith and I always put God above everything — I pray a lot every day.”
Adalgisa frequently posts photos and videos to Instagram that show the hardships her family endures.
There are currently 12,900 people who follow the account, showing that Graziely and her family have widespread support around the world.
However, occasionally critical remarks appear within the outpouring of praise. Adalgisa doesn’t sit on the fence when it comes to those kinds of situations.
She doesn’t mind that she was called a “giant baby” at birth, as the word “baby” has a generally good connotation.
But the insults are what really make her sad and angry.
”I don’t think it’s cruel because “baby” is an affectionate word, but when they call out her “big head” I feel sad,” she says.
However, love ultimately triumphs.
A video of Mother Adalgisa feeding her daughter has gone viral, with over 110,000 views.
“God bless you so much,” one viewer wrote.
“You’re an angel, a beautiful soul, may God bless you always,” penned another.
“This woman is an incredible mother,” a third commenter added.
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