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26-Year-Old Dying Of ‘100% Fatal’ Disease Reveals The First Symptom He Ignored

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26-Year-Old Dying Of ‘100% Fatal’ Disease Reveals The First Symptom He Ignored

In an attempt to assist others, a 26-year-old who is suffering from a deadly illness has courageously created a film that describes the initial symptoms that led to his diagnosis.

Mikey Stone, who goes by @mikeystonemusic on TikTok, talks candidly about being told he has a neurological condition that is “100% fatal.” This life-altering diagnosis was given to him at the age of 25.

Lou Gehrig’s disease, also known as Amyotrophic Lateral Sclerosis (ALS), is a rare disease that affects Mikey’s motor neurons, which are the nerves that regulate voluntary muscle movement.

ALS has no known cure, and people who are diagnosed with the illness usually only live for three to five years after their symptoms first appear.

Source: Unsplash

The signs that diagnosed Mikey with ALS

Mikey courageously discusses his condition in his video, stating that “the nerves that control my body are dying.” I’m getting paralyzed slowly.

“Eventually, people with ALS lose the ability to talk, walk, eat, and breathe,” he adds.

However, Mikey’s assistance in identifying the symptoms of ALS onset is arguably the most significant aspect of the video.

“It started small,” he explained. “I noticed my foot twitching and my muscles tightening. Then, the weakness crept in.”

“First my legs, my left arms, my hand…and it hasn’t stopped.”

After being diagnosed earlier this year, Mikey continues, he now uses a wheelchair “50% of the time” and requires a ventilator to breathe at night.

Mikey, nevertheless, isn’t giving up.

“I want to spread awareness,” he says. “And encourage people to support ALS research because research means more clinical trials, better treatments and hopefully, one day, a cure.”

https://www.tiktok.com/@mikeystonemusic/video/7535148896029297950?referer_url=portal.junglecreations.com%2Fcms%2Fposts%2F89ca618b-0e68-46b7-9e34-92f91ff3e3ba&refer=embed&embed_source=121374463%2C121468991%2C121439635%2C121749182%2C121433650%2C121404359%2C121497414%2C121477481%2C121351166%2C121811500%2C121860360%2C121487028%2C121331973%2C120811592%2C120810756%2C121885509%3Bnull%3Bembed_blank&referer_video_id=7535148896029297950

What is ALS, also known as Lou Gehrig’s Disease?

The most prevalent type of motor neuron disease (MND), which affects the nerves in your body that regulate muscle movement, is amyotrophic lateral sclerosis (ALS).

ALS patients have trouble eating, talking, walking, and sometimes breathing because they lose control of their motor abilities.

In the United States, ALS is often frequently referred to as Lou Gehrig’s Disease, after the well-known baseball player who was forced to retire in 1939 due to the disease’s impact on his performance. Gehrig will pass away at the age of 37 in 1941, two years later.

Mikey has urged anyone looking to help ALS patients to make a donation to the Live Like Lou Foundation, which finances promising ALS research. Donations to the foundation can be made here.

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With over a decade of experience in digital journalism, Jason has reported on everything from global events to everyday heroes, always aiming to inform, engage, and inspire. Known for his clear writing and relentless curiosity, he believes journalism should give a voice to the unheard and hold power to account.

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