A 13-year-old boy who was one in only five people in the world had extremely rare cancer that meant he had only two weeks left to live…
Deryn Blackwell was diagnosed with leukemia when he was just ten, and it was devastating moment for the whole family…
A year later, he was told he had another type of cancer – Langerhans cell sarcoma, which only fine people in the world had back then.
There wasn’t know patient who had the two cancers, making Deryn the only one in the world with that diagnose.
After four years going to hospitals nothing worked for the poor boy, so his mum Callie tried something that was not available in the UK.
Doctors said it could be effective, but it wasn’t tested on children so she couldn’t get a prescription.
In an except from hew new book The Boy In 7 Billion, published in the DailyMail, Callie said: “We took a decision that will horrify many parents reading this – and horrified me, too.
After all, I’d never seen anything positive come of smoking cannabis, and in my days working in nightclubs, illegal drugs had been my enemy.
But if it could help my darling boy escape his daily torment, I was willing to try it.”
Deryn’s dad, Simon, arranged to meet someone illegally to to pick some cannabis. He did take that risk even if it carried up to five years imprisonment for possession.
Meanwhile, his sons condition was worsening by the day, and doctors told them that if there wasn’t any improvement in two weeks, he must be put into palliative care.
His mother Callie bought a rice cooker and vegetable glycerine, and was able to make the ‘tincture’ suitable for a vaporise pen and gave it to Deryn.
Callie said: “After ten minutes, Deryn said that the pain had decreased a little and he felt more relaxed – the words we had been longing to hear.”
His pain still wasn’t going away, and by December that year, Deryn was moved into a hospice where he planned his own funeral.
All of a sudden one night, Deryn woke up in the early hours of the morning and told his mum Callie: “I don’t want any more morphine, Mum. It makes me feel like I’m not here.”
She couldn’t stand to see him bear so much severe pain and decided to give Deryn a small amount of cannabis tincture directly in his mouth when no one was around.
After half an hour, he was no longer having a panic attack and felt at peace.
Callie said: “Over the coming days, my priority was allowing him to die with his faculties intact, so whenever Deryn felt a twinge somewhere, I would put another 5ml of the tincture underneath his tongue and, within a few minutes, he felt good again.
Deryn’s mouth, fingers, stomach, gums, tongue, hips, knees, legs and back had been constantly painful for as long as I could remember, so this was nothing short of fantastic.”
A short while later, a hospice doctor told Callie: “We’re no longer sure Deryn is dying.”
Since that day, he has been gaining strength and was removed from the hospice.
Callie said: “I am reminded of my miracle boy every time I look at Deryn and I know deep in my heart that whatever the future may throw at us, we can cope. We always do.”
Being a parent means making tough decision,s and this family took one that saved their son’s life.
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